About Jacob

Our Son Jacob was born prematurely at 32 weeks, in 2013. He did amazingly well and was discharged after three weeks in the Neonatal Unit. His development was as expected the first few months of his life; however, at around 5 months old we noticed he started missing his milestones. He couldn't sit, didn't learn to crawl or pull himself up. At 18 months old Jacob was diagnosed with Spastic Diplegic Cerebral Palsy, affecting both his legs. Due to the stiffness in his legs we have been told Jacob will not walk without SDR surgery.

Selective Dorsal Rhizotomy (SDR) is an operation developed by a Doctor in Missouri, America that can be performed to release the spasticity and give Jacob the chance to walk. We will need to fundraise to cover the cost of the procedure.

The money raised for Jacob will enable us to fly him out to America to have the operation performed by the Doctor who pioneered the SDR surgery. It will also pay for the intensive private physiotherapy required for two years after the operation, as this will not be available to him on the NHS.

Jacob is a happy, determined little boy that just wants to learn to walk so he can join in and have fun with his two big sisters. The frustration is beginning to show with him as he grows up and realises his limitations. He so desperately wants to walk but his legs just won't let him.

As a parent it is heartbreaking to have to sit back and watch your very bright, smiley little boy struggle to get around, when all he wants to do is walk. It would mean the absolute world to us to be able to raise this money for him to enable him to have this operation and one day watch him take his first steps.

(Written by Jacob's mum Nicola)

For more information on how Jacob is doing check out him out on facebook or twitter

FAQs

How old is Jacob?

Jacob was 2 in November.

Why can't Jacob walk?

Jacob has Spastic Diplegic Cerebral Palsy, affecting both his legs.

How will SDR surgery enable Jacob to walk?

SDR involves sectioning (cutting) of some of the sensory nerve fibres that come from the muscles and enter the spinal cord. This will reduce the spasticity and stiffness that Jacob has in his legs.

Can Jacob walk at all at the moment?

No. He can now sit unaided and he tries taking steps with someone supporting him but he is very unlikely to walk at all without SDR surgery.

Is the operation available on the NHS?

It has been. In 2014 the NHS funded 240 SDR operations over a trial 2 year period. This trial is ending in March 2016 and at present on going funding has not been secured for any further surgery to be carried out on the NHS.

Could the operation be done privately in the UK?

Yes. However, the cost of the operation is pretty much the same in the UK as the USA. The reliability of the USA is much better and in the USA it will be carried out by the doctor who pioneered the surgery and has done it thousands of times.

How will the £65,000 be spent, is that just for the operation?

The operation itself costs approximately £30,000. The other £35,000 is to cover the cost of travelling to the US, accommodation for the 4/5 weeks we will be over there and then the two years of physio therapy that Jacob will need afterwards at approximately £250 a week. He will also attend SDR fitness in Wales costing £1200 a year.

Do you have a date for the operation?

Not yet as it depends how quickly we can raise the funds. We have an optimistic aim of this summer (2016) in mind at the moment but will provide updates on this as months progress.

What will happen to any extra/spare money you raise?

We will donate that to help other children like Jacob with Cerebral Palsy.

Events

Upcoming events in aid of Jacob's journey - his wish to walk:

Duncan's six peaks challenge

25th - 30th September

Duncan Bell climbing the six peaks in the UK.

Cheltenham half marathon

Sunday 25th September

Kirsty Watts running the Cheltenham half marathon.

Cardiff half marathon

October

Gemma Evis climbing Mount Kilimanjaro.

Sunday 2nd October

Tamie Slade running the Cardiff half marathon.

Race night

Friday 4th November - Worlebury Golf club, Weston-super-Mare

Details TBC. Ring 01934 413139 for tickets.

Weston half marathon

Sunday 6th November

Teresa Whatty running the Cardiff half marathon.

Events already held in aid of Jacob's journey - his wish to walk:

Baby event

Wednesday 24th February - Mothercare, Weston-super-Mare

TBC.

Cake sale

Week commencing 7th March - Little acorns pre-school, Weston-super-Mare

£400 raised.

80s disco night

Friday 11th March - Club Tabu, Boulevard, Weston-super-Mare

£650 raised.

  • Nice wig!
  • On the dancefloor
  • Outside Club Tabu

Fundraiser at Rascals

Saturday 19th March - Rascals, Weston-super-Mare

£1000 raised.

  • Jacob raising his arms in the air
  • Getting ready to sell cakes
  • Everybody joining in

Wear something green for Jacob

Friday 1st April - Mead Vale Primary School / Worle Village Primary School

£520 raised.

Online shopping event at Forever Living - Emma Harraway

Sunday 3rd April

£54 raised.

Fight Night at the Borough Arms

Saturday 9th April - Borough Arms

£73.50 raised.

10th anniversary celebration

Saturday 23rd April - Weston Beauty Clinic

£205 raised.

Music with Mummy

Saturday 23rd April - Milton baptist church, Weston-super-Mare

£376 raised.

  • Jacob enjoying Rascals
  • The fundraising team
  • Jacob at Rascals

Ed Byrne after show collection

Wednesday 4th May - Playhouse

£260 raised.

  • Ed Byrne with the fundraisers

Wine tasting evening

Friday 6th May - The Wine Shop, Winscombe

£665 raised.

Moo & Boo crafty gifts market night

Sunday 22nd May

£30 raised.

Wear something green for Jacob

Friday 27th May - Weston college

£500 raised.

Family fun day

Saturday 11th June - Baytree Rec, Weston-super-Mare

£6327 raised.

Dress down day

Friday 1st July - Worle School

TBC.

Ceilidh dinner dance

Friday 1st July

£500 raised.

The Grand Ball

Saturday 2nd July - Batch Country House, Lympsham

£18650 raised.

Harry Potter dress up day

Friday 8th July - Locking Primary School

TBC.

Sponsored Lego superhero walk

23rd - 26th July

£1589 raised.

Skydive

Sunday 24th July

TBC.

Quiz night

Sunday 31st July - Lamb, Worle

£513.90 raised.

Tuesday Tots summer fun day

Tuesday 2nd August - Nailsea School

£317.51 raised.

Bristol belter cycle ride

Sunday 4th September - Bristol

£1516.63 raised.

Thanks

Thank you to each and every person who has made any contribution whatsoever to help us on our quest. They include, but are not limited to, the following:

Fundraisers

  • The Wineshop - hosting a wine tasting evening and selling raffle tickets
  • Teresa Whatty - running a half marathon
  • Gemma Evis - climbing Mount Kilimanjaro
  • Nathan Dee - did a 20 mile run raising £410
  • Ben Harris - doing the Mendip challenge
  • Shiek Mohamed - doing a 200 mile cycle ride
  • Sandra's unisex hair salon - holding a raffle
  • Kirsty Watts - running the Cheltenham half marathon
  • Mothercare (Weston-super-Mare) - held a raffle at their baby event
  • Suse Vicarage - charity cake bakes
  • Kelly Giles - running the Cheltenham half marathon
  • John Griffiths - doing a 200 mile coast to coast cycle ride
  • Weston college - had a "wear something green for Jacob" day
  • Sharon Davis - dying her hair green for a month
  • Borough Arms - showed the heavyweight fight and raised £73.50
  • Mead Vale Primary School - had a "wear something green for Jacob" day
  • Worle Village Primary School - had a "wear something green for Jacob" day raising £200
  • Rascals - held a fun morning raising £1000
  • Emma Harraway - held a Forever Living event online raising £54
  • Little acorns pre-school - held a cake sell raising £400
  • The Beauty Spot - donating £5 per treatment for ball appointments

Expertise and services

Displaying collection tins

Prize donations

  • Bliss embroidery - personalised towel
  • Forgetmeknots - treatment voucher
  • Your hair sanctuary - cut and blow dry
  • Amy Chelsea Winter - bottle of champagne
  • Tanya Ponton - numerous including Pandora charm and braclet
  • Future Inns - overnight stay with breakfast
  • Atlantic Fish Bar and Restaurant - two gift vouchers
  • The Blitz Tearoom - gift voucher
  • Jackie's cupcakes - gift voucher
  • JoJo Maman Bébé - gift voucher
  • Beauty Oasis Spa - gift vouchers and ladies gifts for the tables at the Grand Ball
  • Tanya's Tizzy Treats - selection of sweet cones
  • Mell Old - selection of brand new toys and bottles of wine/liqueurs
  • Neal's Yard - skin care set
  • Teresa Whatty - 3 boxes of Thornton's chocolates
  • Caffè Nero - gift voucher
  • GWR - rail tickets
  • The Wineshop - wine tasting gift voucher
  • Puxton Park - 2 family day passes
  • Emma Sanders - large collection of new toys
  • Eurocams - boxing gloves signed by Joe Calzaghe and Cricket book signed by Jack Russell
  • Harris & Lee Estate Agents - two bottles of wine
  • Lidl - food hamper
  • Pete Trego - Cricket bat and Somerset Cricket shirt signed by the Somerset team. Cricket shirt signed by Pete Trego and Marcus Trescothick
  • Scissorhands - gift voucher
  • Nikki Harding - large box of assorted raffle prizes
  • Ring O Bells - seven course taster menu for two
  • Timeless Images - family studio portrait session and 10 x 8 print
  • Radley - Tula handbag
  • Julie and Terry Hood - case of wine
  • Ben Stokes - signed England Cricket shirt
  • Fiona Hadley - Radley handbag
  • Butlins - family day pass
  • Fiona Miles - Next perfume and Body Shop gift sets
  • Chris Dee - signed Bloodhound print
  • The Webbington Hotel - overnight stay and spa treatments
  • Experience Days - experience voucher
  • Mendip Gliding Club - taster gliding experience
  • Jessica and Megan Llewellyn - jigsaw puzzles
  • Helen Perrett - Body Shop gift set
  • James Arvin - bottle of champagne
  • Ian Stapleton - Movie crew baseball caps and t shirts (including Harry Potter, Maleficent and Warhorse). Harry Potter storyboards. Signed books and prints (including Johnny Depp, Derren Brown and JJ Abrams). Signed DVDs and CDs (including Peter Kay, Peter Andre and Olly Murs).
  • The Big Sheep - day voucher
  • West Midland Safari Park - day voucher
  • Hollywood Bowl - gift voucher
  • Avon Valley Railway - day voucher
  • Watermouth Castle - day voucher
  • Wildlife and Dinosaur Park - day voucher
  • Peppa Pig World - gift voucher
  • Wookey Hole - family pass
  • Juliet Wait - tin of chocolates and box of biscuits
  • Mulberry - handbag
  • Brean Splash - gift voucher
  • Tropiquaria - gift voucher
  • Rachel Pullen - Tokyo Wok gift voucher
  • Kathy Kirby - large bag of raffle prizes and two bottles of Champagne
  • Hutton Moor Leisure Centre - swim pass for four and one month membership
  • Sarah Millican - signed DVD
  • McLaren - team shirt signed by Jenson Button and Fernando Alonso
  • Clarks - gift voucher
  • Chris Ramsey - signed DVD
  • @Bristol - family pass
  • Paloma Faith - signed postcard and t shirt
  • buyagift.co.uk - bungee jump
  • Broad Street hair and beauty - gift voucher
  • Becky O'Rourke - bag full of tombola prizes and a large teddy
  • Ellie and Chris Gingel - Champagne balloon flight
  • Virgin Active - 2 one week passes
  • Lindor Chocolates - huge slection of chocolates for raffle prizes and favours for the Grand Ball tables
  • Storm Kennedy - Tropics gift set
  • Weston Golf Club - day pass for four
  • ACF Teambuilding and Events - tank driving experience
  • Kwik MOTs - MOT vouchers
  • Waitrose - box of chocolates
  • Pirate Adventureland - family passes to sky wheel and adventure golf
  • Coffee#1 - hot chocolate
  • Porsche Centre Bristol - driving experience
  • The Nail Lounge - gift voucher
  • Lisa De-Laune - selection of wines and spirits
  • Bosphorous resaurant - gift voucher
  • Aldi - large selection of wines and chocolates
  • Claire Stoney - five day break at Haven Devon Cliffs
  • Majestic Wine - wine course gift voucher
  • Jamie Paul Scanlon - genuine original artwork on canvas
  • Ricky Williams - Wembley tickets for England game
  • Wilkinsons - gift vouchers
  • Richard Date, Tracey Carter and Amanda Arlotte - signed Exeter rugby hat
  • Hood & Norville - theatre vouchers
  • Tanya Ponton - Avon hamper
  • Rachel Pullen - Younique hamper
  • Batch Country House Hotel - Pimms hamper
  • Crawfords Carpet and Upholstery - gift voucher
  • Golden Lion - meal voucher
  • Haynes Motor Museum - family pass
  • Thorntons - chocolates

Cash donations

  • Sharon Davis
  • Nicholas Middleton
  • Carlos PulidoO
  • Lee Randle
  • Craig Tripney
  • Amelia Davies
  • Simon Brewer
  • Chris Young
  • Jessika Robinson
  • Richard Macauley
  • Brenda
  • Linda Lacey
  • Anne Edwards
  • Denis & Jackie Bingle
  • Lester Green
  • Chris & Bob Keedwell
  • Colin Wood
  • Laura Barton
  • Caroline Smith
  • Veronica Leavy
  • JoJo Kelly
  • Kieron Ward
  • Liz Griffiths
  • Gemma Meeson
  • John & Sheila Harris
  • John Beaumont
  • Joanne Nixon
  • Gill Llewellyn
  • Sheila Stitson
  • Qing Wan
  • Frank Day
  • Virginia Hayes
  • Layla Whitlock
  • Mark Salamonsen
  • June Hill
  • Paul & Pat Goodrich
  • Dan Broughton
  • Chris Argles
  • Phil & Jane Dickenson
  • Matthew Melias
  • David Matthews
  • Sharon Arvin
  • Charlotte Shelton
  • Barry Steele
  • Barrie Gamble
  • Scott Brown
  • Lilian Gaylor
  • Kelly Long
  • Petra John
  • Katie Williscroft
  • Kerrie Harding
  • Roger Burnell
  • Callum Williams
  • Pat & David Oliver
  • Irene Baird
  • Stacey Baker
  • Lisa dipper
  • Louise Pomfret
  • Sophie Mason
  • Rose Brooks
  • Juliet Wait
  • Samson & Oge Egbulonu
  • Beth Harris
  • Barbara Knowles
  • Kathleen Kirby
  • Dom Sumner
  • Lynsey Salter
  • Anne Austin
  • Julie Land
  • Bev Vincent
  • John Mumford
  • Sarah Smart
  • Linda Tori
  • Zoe Cardwell
  • Martin Tudgay
  • Liviu Rodeabu
  • Alexandru Teodoru
  • Nadeem Mir
  • Lynne vellacott
  • Mr & Mrs Mealing
  • Nicholas Middleton
  • Emma Hartley
  • Gokhan Urun
  • Elaine day
  • Alan Jenkins
  • Pauline Horsey
  • Sheila Ellis
  • Alex Joicey
  • Linda Chandler
  • Richard Taylor
  • Nicol Scott
  • Tony Canvin
  • Pat Tandy
  • Geoff Paver
  • Daniel Broughton
  • Jo Harvey
  • Sarah Senior
  • Lorraine Frost
  • Janine Halliday
  • Stephanie Marsh
  • Anne Leaver
  • Rio-Roxanne West
  • Andrew Bell
  • Jan Elford
  • Jillian Dunne
  • Phil Walker
  • Marianne & Graham Foord
  • Owen Wong
  • Eddie Reid
  • Nikki Bryant
  • Robin Potter
  • Susan Simms
  • Howard Fisher
  • Michaela Ford
  • Adam Wintle
  • Katherleen Withers
  • Claire Langley
  • Kelly Saghir
  • Pilar Morales
  • William Fry
  • Jon Boden
  • Darryn Owen
  • Neil Clark
  • James Boden
  • Holly Kieser
  • Sarah Newcombe
  • Nick Bennett
  • Sam Martin
  • Rachel Kraft
  • Lucy Kempster
  • Alexandra Fry
  • Tamie Slade
  • Annabell Hawkins
  • Em Horrex
  • Naomi Hendy
  • Tanya Patston
  • Janice Cousins
  • Helen Cole
  • Jane Ratcliffe
  • Andrew Starforth
  • Su Hunt

Downloads

Thank you for your interest in helping Jacob's Journey. We have a selection of printable resources to help you with your events.

Contact Us

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